PRECISION Pain Research Registry
What is PRECISION?
PRECISION stands for Pain Registry for Epidemiological, Clinical, and Interventional Studies and Innovation. Research registry projects gather large amounts of information to create a more complete picture of people’s experience with a condition or disease, and can use data collected and analyzed from hundreds or thousands of participants to determine risk factors, to develop prevention methods, to evaluate the use of common treatments, and to potentially recommend more effective management in the future. Additionally, biological samples collected from registry patients may be used to study DNA sequences and other biomarkers consistent with the emerging field of Precision Medicine. A variety of local community organizations are now represented on our Community Advisory Board.
— The ORC (@ORCresearch) April 12, 2017
The Institute of Medicine estimates that pain affects many aspects of life for more than 100 million Americans, and costs our nation more than $560 to $635 billion annually in health care and lost productivity. Unfortunately, many current treatments for low back pain are either not very effective, or have potentially serious or life-threatening side effects such as becoming addicted to or overdosing on prescription painkillers.
There are a number of ways the data collected through this research registry could potentially be used in the future. Once the research team has enough data to begin seeing trends, more specific research questions can be formulated. For example, data initially collected from the overall group of participants could be used to refine research hypotheses for future investigations.
During this initial phase of the research registry, in which we plan to enroll 1,000 people, you can help by sharing information about PRECISION so we can enroll a diverse group of people that will make the findings more generalizable for our community. By working with us as data and biological samples are analyzed, you can help us determine the research agenda for better ways to manage pain. You can also help share our findings with other stakeholders in the community.
If you work in the health care field, as a provider, health professional, researcher, or student, you can help us learn more about the natural history of low back pain so we may find better ways to treat and prevent chronic low back pain. Referring patients to the registry is a great way to help our research team and community as we work together toward our vision of “a future for all unbounded by pain.”
This page was last modified on May 24, 2018